I was hyper-focusing on who were the experts in my community that could help me help my son. There was not much information out there. It was like trying to find a needle in a haystack. I could not understand why there was not any info readily available for me. I had no one to talk to about this either. All of my friends kids were Perfect, so they couldn’t help me.
One day I found my guardian angel, Evelyn. Evelyn worked at a non-profit advocacy center. I was so excited that I found someone who wanted to hear my story and had answers for me! Evelyn heard the uncertainty in my voice as I was telling her my story along with a gazillion questions. Finally Evelyn couldn’t take my blubbering and told me to get a piece of paper and a pen and write this list down. She wanted me to follow the list precisely and call her back when I finished the list.
I was finally getting somewhere! Evelyn was an advocate for children with disabilities. Evelyn’s job was to help parents learn how advocate for their children.
You can find your guardian angel by going to this website:
Click on the right side the menu bar and find parent center, then press on the regional PTAC ( parent technical assistance center) press on initial in your state and you will find the center that you can get assistance from. Once you have found your PTAC, get to know these experts, ask tons of questions, call them on a regular basis to let them know what’s going on. Pretty soon they will know you by name, like mine did (lol!).
Join the ADHD support group CHADD:
Go on this website to find your local CHADD Chapter and attend the monthly support group meetings as well as the lectures. This is a great way to meet people that are in the same shoes as you. Go to the vendors there and check out the products and services they offer and really get to know these people. These are the individuals that will help you on your journey.
Join your local SEPTA (special education parent teacher association). You can find this support group in your school district. The easiest way to find them is to look on your school district’s website or just call the school and ask. Once you have joined this group you will be making even more friends that have children just like you. The President and Vice President will be extremely valuable to you since they have been doing the advocating game for a while now and will be extremely helpful to you and may even be able to help you at your child’s CPSE (Commitee On Special Education) or CSE (Committee on Special Education) meeting. You need to join this group, even if your child is in preschool. As you go on this journey of yours you will need to plan one year ahead to keep your head above water.
Next is to join or create your own Mom’s Group. This is where you and your child get to have fun and meet lots interesting people. Make sure you join a group that has children the same age as yours, so they can actually play together. Your child will get plenty of great role models to play with. I personally looked on the internet for a Moms Group and joined. After a while my friend and I decided to create our own group. I can’t even to begin to express to you how much that group helped me get through the roller coaster ride of ADHD. Most of these women have become my best friends.
Up next: How do I Ask For Help through My County or School District?